What is EUPATI?
The European Patients’ Academy on Therapeutic Innovation (EUPATI) is a multi-stakeholder public-private partnership originally established by the IMI-EUPATI project (2012-2017). It is a successful programme that provides education and training to increase the capacity and capability of patients and patient representatives to understand and meaningfully contribute to medicines research and development (R&D), and to improve the availability of medical information for patients and other stakeholders.
It does so by conducting its established Patient Expert Training Course which has trained more than 150 patient experts (EUPATI Fellows), and with 60 more enrolled currently in the Course. In addition, EUPATI provides an open-access multilingual Toolbox that has served more than 3.5 million users around the world to date.
Currently, EUPATI is led and hosted by the European Patients’ Forum (EPF) and in 2020 a Foundation will be established in the Netherlands to host its activities. Subscribe to the EUPATI newsletter and social media channels for more information.
If you would like to collaborate with EUPATI, please check this page.
What does EUPATI offer?
Patient Expert Training Course
The Patient Course is an exciting and unique opportunity offering patients and patient representatives expert-level training in medicines research and development. The Course is a blended mixture of e-learning training events over 15 months. To date, more than 150 patient experts have graduated and have acquired skills and knowledge to make meaningful, active contributions in high level processes of patient engagement in medicines research and development. For more information about the redesign of the Course, click here.
The Toolbox was launched in January 2016 and contains a library of information around medicines research and development. This information is not medicine- or disease-specific. More than 4 million users have accessed the information on the Toolbox in less than four years, and users can access the Toolbox information in 13 languages. Explore the Toolbox.
EUPATI National Platforms (ENPs) mirror the EUPATI partnership at the country level. In some countries, ENPs are set up as an informal group run by volunteers, other countries have established legal entities with formal statutes and paid staff in place. Their work includes establishing national patient education programmes, establishing charters for patient involvement, members speaking internationally at conferences and promoting education by establishing workshops on patient engagement, mini-courses or webinars. Visit our National Platforms here.
Training on Patient Engagement
Training on Patient Engagement is necessary since there is a lack of understanding of efficient involvement that ensures patients and professionals both have a meaningful engagement that meets everyone’s expectations. EUPATI has developed trainings to meet these needs. The patient engagement trainings are co-designed and co-delivered with patient representatives in a multi-stakeholder framework. Click here to know more about our training portfolio.
EUPATI sits at the key interface between stakeholders looking to engage patients, and patients with the requisite knowledge to provide expert level input into medicines R&D. We therefore provide an increasingly active matchmaking service for members of the EUPATI partnership. Would you like to collaborate with us? Click here
Infrastructure for Patient Engagement
There is a wealth of initiatives on patient engagement and EUPATI collaborates closely bringing in the essential education component. True patient engagement cannot exist without quality education, hence our involvement with initiatives at the European and Global level. With its infrastructure for patient engagement, EUPATI moves the latest developments into practices through education. Click here to know more about these initiatives.
Meet the Team
Maria DutarteEUPATI Coordinator
Maria joined EUPATI in 2020 as the Coordinator. She oversees the team’s activities and manages the Patients’ Academy. She has previously worked as a Project Manager at the European AIDS Treatment Group (EATG) coordinating patient involvement in a number of training initiatives and scientific projects. Maria has also worked for different scientific and international organisations. Her educational background is in International Education and Communications.
Ingrid HeyneTraining Organisation Coordinator
Tamás joined EUPATI in 2014 and has been leading the development of training and content as well as the communications of EUPATI. He holds a PhD in Social Psychology and has extensive expertise in training and educational methods, practical training and research methodology.
After 13 years in the Pharmaceutical Industry, Ingrid Heyne joined EUPATI in 2012 at the start of the EUPATI IMI Project as the Network Coordinator. Currently, Ingrid is responsible for the organization and logistics of the EUPATI training portfolio, including the Patient Expert Course and the Patient Engagement trainings. Ingrid also acts as the Alumni Coordinator.
Gemma KilleenBusiness Development & ENP Coordinator
Gemma joined EUPATI in 2017 and her role involves coordinating the extensive network of ENPS along with progressing EUPATI’s business development agenda. Her expertise lies in strategy development and implementation, campaign management, and key leadership and stakeholder advocacy and engagement.