Publications

EUPATI is unique not only in the field of cooperation across the different stakeholders in medicines research and development. It has also produced an impressive list of peer reviewed and other publications that discuss the importance, utility and methods of patient involvement.



Articles and publications listed here are about EUPATI and help the reader understand better what EUPATI it is about and how it contributes to better research and more meaningful medicine development.



You are welcome to use these resources with the references provided.



List of publications



EUPATI: An initiative to provide expertise in patient advocacy and in medicines development processes
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Pavitt, S. (2013), ‘EUPATI: An initiative to provide expertise in patient advocacy and in medicines development processes’, Regulatory Rapporteur – V Vol 10, No 9, September 2013



Turning the Titanic
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A. Zerhouni, Turning the Titanic. Sci. Transl. Med. 6, 221ed2 (2014). 10.1126/scitranslmed.3008294



Training on trials: Patients taught the language of drug development
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Shraddha Chakradhar (2015), ‘Training on trials: Patients taught the language of drug development’, Nature Medicine, Volume 21, Number 3.



What the public knows and wants to know about medicines research and development: a survey of the general public in six European countries
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Parsons S, Starling B, Mullan-Jensen C, et al. What the public knows and wants to know about medicines research and development: a survey of the general public in six European countries. BMJ Open 2015;5:e006420. doi:10.1136/bmjopen-2014- 006420.



EUPATI: Collaboration between patients, academia and industry to champion the informed patient in the research and development of medicines
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EUPATI: Collaboration between patients, academia and industry to champion the informed patient in the research and development of medicines. Journal of Medicines Development Sciences, vol.1(1): 74–80. http://dx.doi.org/10.18063/JMDS.2015.01.011.
Pushparajah D S, Geissler J and Westergaard N, 2015,



What do pharmaceutical industry professionals in Europe believe about involving patients and the public in research and development of medicines? A qualitative interview study
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Parsons S, Starling B, Mullan-Jensen C, et al. What do pharmaceutical industry professionals in Europe believe about involving patients and the public in research and development of medicines? A qualitative interview study. BMJ Open 2016;6:e008928. doi:10.1136/bmjopen-2015-008928



Three resonating patient-centric initiatives
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Karyn Korieth, The CenterWatch Monthly, July 2016



Facilitating International Cooperation in Non-Commercial Clinical Trials
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Organisation for Economic Co-operation and Development (OECD), Global Science Forum Global Science Forum, October 2011



A Paradigm Shift Towards Patient Involvement in Medicines Development and Regulatory Science : Workshop Proceedings and Commentary
Borup, Gitte; Bach, Karin Friis; Schmiegelow, Merete; Kildemoes, Helle Wallach; Bjerrum, Ole Jannik; Westergaard, Niels / A Paradigm Shift Towards Patient Involvement in Medicines Development and Regulatory Science : Workshop Proceedings and Commentary. In: Therapeutic Innovation & Regulatory Science, Vol. 50, No. 3, 05.2016, p. 304-311



2017 09 ERS RED-Hamerlijnck_ The importance of patient involvement in clinical trials
Hamerlijnck, Dominique; In: ERS — Respiratory Equipment And Devices Exhibition Magazine, August 2017.



Improving Patient Involvement in Medicines Research and Development: A Practical Roadmap
Volume: 51 issue: 5, page(s): 612-619, Article first published online:May 8, 2017; Issue published: September 1, 2017
Received: November 11, 2016; Accepted: March 13, 2017; https://doi.org/10.1177/2168479017706405



EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Regulatory Processes.

Haerry D, Landgraf C, Warner K, Hunter A, Klingmann I, May M and See W (2018)  Med. 5:230. doi: 10.3389/fmed.2018.00230



EUPATI Guidance for Patient Involvement in Medicines Research and Development: Health Technology Assessment.

Hunter A, Facey K, Thomas V, Haerry D, Warner K, Klingmann I, May M and See W (2018)  Med. 5:231. doi: 10.3389/fmed.2018.00231



EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Ethical Review of Clinical Trials.

Klingmann I, Heckenberg A, Warner K, Haerry D, Hunter A, May M and See W (2018)  Med. 5:251. doi: 10.3389/fmed.2018.00251