Finances & Transparency

The European Patients’ Academy on Therapeutic Innovation (EUPATI) is a public-private partnership established in 2012 to provide education and training on medicines development to patients and patient representatives. In 2020, EUPATI was established as an independent Foundation in the Netherlands (VAT  Number NL861533197B01, KVK Number 80029019).

How are we funded?

EUPATI is co-financed by in-cash contribution from industry partners and in-kind contribution from public partners, as well as fee-based services to ensure continuous education and reliable information for patients, patient representatives and the wider public. In addition, EUPATI receives funding in the form of projects/grants supported by e.g. IMI, EIT Health and EFPIA. EUPATI is also supported by individual donations.

Sustainability

The sustainability plan for EUPATI is based on a mixed business model with different interconnected funding streams serving to sustain the core EUPATI activities (The EUPATI Patient Expert Training Programme, the EUPATI toolbox and the EUPATI online portal) and enabling widening of EUPATI’s scope. The objective is to have a balanced public-private funding base. 

Sustainability Pillars

Pillar 1: Fee-For-Service Training To All Stakeholders

Seeking to expand the scope of EUPATI to training for all stakeholders – including pharmaceutical industry, other health-related industry, academia, regulators and HTA bodies – as fee-for-service training/courses. The target groups are professionals working in a) patient relations/engagement management and b) in operational roles looking to engage patients.

Pillar 2: On-Demand Patient Expert Training Course

The EUPATI Patient Expert Course has been redesigned to enable learners access all content on-demand on the EUPATI Open Classroom. Learners can complete as much learning as they consider necessary to achieve their own needs/goals. Should they wish to become a Patient Expert and complete all modules, including the problem-based face-to-face sessions and complete competency assessments, they will be awarded the title of ‘EUPATI Fellow’.

The training content is made freely available via the Creative Commons License, and a small fee is charged per course as an administrative fee for issuing the certificate. The generated income is used for the maintenance and further development of the Open Classroom platform.

Pillar 3: Consortium Partners

The ‘Co-financing’ of EUPATI provided by the private and public partners can take the form of both, ‘in-kind’ contributions, or direct financial contributions and can be provided on the central level (EUPATI International) as well as at the national level (EUPATI National Platforms). 

Pillar 4: Projects & Grants

EUPATI participates regularly in calls for projects by e.g. IMI, the European Commission, EIT Health and  other funding bodies, and has several ongoing projects.  EUPATI’s role in these projects focuses on patient education and training. 

Pillar 5: Fundraising

Fundraising/crowdfunding is an additional pillar to generate revenue with a manageable investment. This includes donations as well as activity-based crowdfunding.

Pillar 6: Matchmaking

EUPATI will facilitate collaborative opportunities between academic research institutions, industry partners and EUPATI fellows, other patients and patient organisations who wish to be involved in medicines R&D.  A new platform is going to be introduced by the end of 2021, but the service is already available here

Annual Reports

Showcasing the progress, highlights and achievements of the previous years as well as the commitment of our partners.

2020

2020 saw the establishment of a new EUPATI Foundation based in the Netherlands, as well the development of a new governance structure. Major changes were also introduced in the core activity of EUPATI, the Expert Patient Training Programme. An on-demand online learning platform, the EUPATI Open Classroom, was launched.

 

2019

2019 marked the last year of the bridging period of EUPATI (EUPATI Programme 2017-2019). This report contains the main achievements of the Patients’ Academy as well as the list of our Sustaining Partners in 2019.

2018

2018 marked the graduation of Cohort 3 of the Patient Expert Training Course. It was an important year to define the sustainability plans and action to be undertaken to ensure a long-term sustainability of EUPATI post-2019.

2017

2017 is the first year of the EUPATI Programme, post-IMI project. It was a crucial year to define the work plan of this „bridging period” (2017-2019) and to build mid- and long-term partnerships.