Finances & Transparency

Seeking to expand the scope of EUPATI to training for all stakeholders — including pharmaceutical industry, other health-related industry, academia, regulators and HTA bodies – as fee-for-service training/courses. The target groups are professionals working in a) patient relations/engagement management and b) in operational roles looking to engage patients.

The EUPATI Patient Expert Course is being redesigned to enable learners access all content on-demand. The lessons found in the existing modules will be grouped together as appropriate and released as smaller modules. Trainees may complete as much learning as they consider necessary to achieve their own needs/goals. Should a user wish to become a Patient Expert and complete all modules, including the problem-based face-to-face sessions and complete competency assessments, they will be awarded the title of ‘EUPATI Fellow’.

The ‘Co-financing’ of EUPATI provided by the private and public partners can take the form of both, ‘in-kind’ contributions, or direct financial contributions and can be provided on the EU level (central EUPATI) as well as at the national level (EUPATI National Platforms). This pillar assumes EUPATI keeping its current grant-based model with large pharmaceutical companies but expanding its funding base to new groups of funders which have an interest in EUPATI.

Including different opportunities, e.g. the EUPATI consortium responding to calls by IMI or DG Research, applying for grants offered by other funding bodies, or the EUPATI consortium being approached by other research projects to deliver specific tasks around education and training. EUPATI will also seek to introduce training on patient engagement as a requirement for funding bodies in their calls for proposals.  

EUPATI will use fundraising/crowdfunding as an additional pillar to generate revenue with a manageable investment. This includes donations as well as Reward-based Crowdfunding.

EUPATI will facilitate collaborative opportunities between academic research institutions, industry partners and EUPATI fellows, other patients and patient organisations who wish to be involved in medicines R&D.