What is EUPATI?
The European Patients’ Academy on Therapeutic Innovation (EUPATI) is a multi-stakeholder public-private partnership originally launched by the IMI-EUPATI project (2012-2017) and hosted by the European Patients’ Forum (EPF) from 2017 to 2020. EUPATI is today established as an independent Foundation in the Netherlands. It is a successful programme that provides education and training to increase the capacity and capability of patients and patient representatives to understand and meaningfully contribute to medicines research and development (R&D), and to improve the availability of medical information for patients and other stakeholders.
It does so by conducting its established Patient Expert Training Course which has trained more than 150 patient experts (EUPATI Fellows), and with 60 more enrolled currently in the Course. In addition, EUPATI provides an open-access multilingual Toolbox that has served more than 4 million users around the world to date.
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If you would like to collaborate with EUPATI, please visit this page.
What does EUPATI offer?
Patient Expert Training Course
The Patient Course is an exciting and unique opportunity offering patients and patient representatives expert-level training in medicines research and development. The Course is a blended mixture of e-learning training events over 15 months. To date, more than 150 patient experts have graduated and have acquired skills and knowledge to make meaningful, active contributions in high level processes of patient engagement in medicines research and development. For more information about the redesign of the Course, click here.
Toolbox
The Toolbox was launched in January 2016 and contains a library of information around medicines research and development. This information is not medicine- or disease-specific. More than 4 million users have accessed the information on the Toolbox in less than four years, and users can access the Toolbox information in 13 languages. Explore the Toolbox.
National Platforms
EUPATI National Platforms (ENPs) mirror the EUPATI partnership at the country level. In some countries, ENPs are set up as an informal group run by volunteers, other countries have established legal entities with formal statutes and paid staff in place. Their work includes establishing national patient education programmes, establishing charters for patient involvement, members speaking internationally at conferences and promoting education by establishing workshops on patient engagement, mini-courses or webinars. Visit our National Platforms here.
Training on Patient Engagement
Training on Patient Engagement is necessary since there is a lack of understanding of efficient involvement that ensures patients and professionals both have a meaningful engagement that meets everyone’s expectations. EUPATI has developed trainings to meet these needs. The patient engagement trainings are co-designed and co-delivered with patient representatives in a multi-stakeholder framework. Click here to know more about our training portfolio.
Matchmaking
EUPATI sits at the key interface between stakeholders looking to engage patients, and patients with the requisite knowledge to provide expert level input into medicines R&D. We therefore provide an increasingly active matchmaking service for members of the EUPATI partnership. Would you like to collaborate with us? Click here
Infrastructure for Patient Engagement
There is a wealth of initiatives on patient engagement and EUPATI collaborates closely bringing in the essential education component. True patient engagement cannot exist without quality education, hence our involvement with initiatives at the European and Global level. With its infrastructure for patient engagement, EUPATI moves the latest developments into practices through education. Click here to know more about these initiatives.
Meet the Team
Maria Dutarte
EUPATI Executive DirectorMaria joined EUPATI in 2020 and is the Executive Director of the EUPATI Foundation. She oversees the EUPATI Secretariat and the different workstreams. She has previously worked as a Project Manager at the European AIDS Treatment Group (EATG) coordinating patient involvement in a number of training initiatives and scientific projects. Maria has also worked for different scientific and international organisations. Her educational background is in International Education and Communications.
Tamás Berezcky
Training & Content Development CoordinatorTamás joined EUPATI in 2014 and has been leading the development of training and content as well as the communications of EUPATI. He holds a PhD in Social Psychology and has extensive expertise in training and educational methods, practical training and research methodology.
Ingrid Heyne
Training Organisation CoordinatorAfter 13 years in the Pharmaceutical Industry, Ingrid Heyne joined EUPATI in 2012 at the start of the EUPATI IMI Project phase. Currently, Ingrid is responsible for the organization and logistics of the EUPATI training portfolio, including the Patient Expert Course and the Patient Engagement trainings. Ingrid also acts as the Alumni Coordinator.
Gemma Killeen
Business Development CoordinatorGemma joined EUPATI in 2017 and her role involves supporting EUPATI’s business development agenda (e.g. fundraising and proposal writing). Her expertise lies in strategy development and implementation, campaign management, and key leadership and stakeholder advocacy and engagement.
Vitalii Luchinskii
IT CoordinatorVitalii joined EUPATI in 2020 as the IT Coordinator. He holds a Bachelor’s degree in IT and has 15 years of experience in IT support for different companies. He provides support for EUPATI’s IT infrastructure and online platforms.
Amanda Lyons
Networks & Communications CoordinatorAmanda joined the EUPATI team in October 2020 and works as the Networks & Communications Coordinator bringing a wealth of experience in event and communications management, relationship management, engagement strategy and marketing. Amanda’s role involves supporting the external and internal communications of EUPATI and coordinating the ENP Network helping to continue its growth, as part of the EUPATI programme. Amanda has previously worked in project management and communications in medical and scientific organisations.
Raluca Siska
InternRaluca started a two-month internship with EUPATI in January 2020. She is a student at Amsterdam University College, the Netherlands, majoring in public health, with a minor in media and communication. She is interested in epidemiology and medicine accessibility, and her internship project is focusing on improving the EUPATI Toolbox functionalities and translations.
Training
EUPATI offers face-to-face and online courses on medicines’ research & development and patient engagement, and can also provide training tailored to your organisations’ needs.
View our Training Portfolio
Toolbox
The Toolbox is an online library on the A-Z of medicines research and development and patient engagement. The information is not medicine-or disease-specific, but is applicable to the majority of diseases and/or medicines.
Launch the Toolbox