Taking the future healthcare and patient involvement trends into account, EUPATI aims to anchor it’s growth strategy in the ‘ICE’ structure, comprising of three fundamental pillars:
Information: To enhance the availability of impartial, dependable, and openly accessible information about medical research and development and other health technologies.
Education: To broaden educational and training initiatives for both patients and researchers.
Collaboration: To integrate and enhance interaction and cooperation between patients and researchers within the above two pillars.
Our Values
who we are, how we work and what we stand for
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Reliable
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Inclusive
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Collaborative
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Impactful
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Innovative
Our Unique Strengths
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Transparent, Patient perspective, Multiple Collaborators, Trusted & Reliable Resources
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Safe space, Inclusive, Objective, Impartial, Non-Disease Specific, Not-for-Profit
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Transcend boundaries, Global Reach, Multiple Languages, Accessible, Innovative, Visionary
Our Culture
Family
Our Reach - Creating a global impact
Originally established in Europe as an IMI project, EUPATI’s mission of patient involvement extends far beyond European borders. Driven by growing demand from countries across the globe, EUPATI is expanding its reach to become an organisation with a truly international presence and a meaningful influence worldwide.
With an initial goal to establish National Platforms in nine European countries, our mission has since grown significantly. Today, we have successfully launched EUPATI National Platforms (ENPs) in 24 countries across Europe and beyond, all dedicated to promoting patient education and involvement at national and local levels. Our current ENP members are listed here on the right:
Learn more about ENPs
Our Environment:
Patient involvement in medicines R&D involves collaboration with multiple participants across various fields.
Our main stakeholders:
Patients: This group includes individual patients, carers, patient advocates, patient organisation representatives, and patient experts (EUPATI categorisation).
Researchers: Academic institutions, research consortia, pharmaceutical/MedTech/other health industry representatives, CROs and SMEs, Regulators, HTA bodies
Others: Healthcare providers, Payers, Governmental actors and the wider public.
Our Structure & Code of Conduct
Structure: EUPATI launched as a public-private initiative in 2012 under the Innovative Medicines Initiative (IMI) of the European Commission, aimed to enhance patient understanding and involvement in medicines research & development. The multistakeholder consortium created educational materials, launched training of ‘patient experts’ (EUPATI Fellows), and empowered them to advise industry and academia. Later hosted by the European Patients’ Forum (2017-2020), EUPATI operated as an educational programme.
In August 2020, EUPATI became an independent non-profit in the Netherlands. The formal name of the EUPATI Foundation is ‘Stichting EUPATI Foundation’ (Dutch Chamber of Commerce, KVK, number 80029019). It has the status of a “Public Benefit Organisation” (Dutch: Algemeen Nut Beogende Instelling, ANBI) in the Netherlands.
EUPATI is a public–private partnership whose governance structure embodies this collaborative spirit. It brings together a diverse community of stakeholders spanning all stages and perspectives of the medicines research and development process. The knowledge and experience of EUPATI’s partner organisations, National Platforms, Fellows, and committee experts are fundamental to everything we do — from developing content to delivering high-quality training.
You can find the EUPATI Foundation Statutes here and Operating Rules here.
The EUPATI Code of Conduct: outlines the working culture and spirit of “assumed good intent” within EUPATI, while the EUPATI Ethical Framework outlines the ethical ground rules. They apply to all EUPATI partners and all those involved in carrying out work for EUPATI (referred to as “contributors”.) For more details, read through our document attached here
European Patients’ Academy on Therapeutic Innovation (EUPATI), Stichting EUPATI Foundation,
Daltonlaan 600, 3584BK Utrecht, The Netherlands. Contact us at [email protected] or via https://collaborate.eupati.eu/.
