What is EUPATI?
The European Patients’ Academy on Therapeutic Innovation (EUPATI) is a multi-stakeholder public-private partnership originally launched by the IMI-EUPATI project (2012-2017) and hosted by the European Patients’ Forum (EPF) from 2017 to 2020. EUPATI is today established as an independent non-profit Foundation in the Netherlands. It is a successful programme that provides education and training to increase the capacity and capability of patients and patient representatives to understand and meaningfully contribute to medicines research and development (R&D), and to improve the availability of medical information for patients and other stakeholders.
It does so by conducting its established Patient Expert Training Programme which has trained more than 200 Patient Experts (EUPATI Fellows), and with 200 more currently enrolled via the EUPATI Open Classroom. In addition, EUPATI provides an open-access multilingual Toolbox that has served more than 5.5 million users in 13 languages around the world to date.
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If you would like to collaborate with EUPATI, please visit this page.
What does EUPATI offer?
EUPATI Fellow Programme
The EUPATI Fellow Programme is an exciting and unique opportunity offering patients and patient representatives expert-level training in medicines research and development. The Programme is a mixture of e-learning and training events . To date, more than 200 patient experts have graduated and have acquired skills and knowledge to make meaningful, active contributions in high level processes of patient engagement in medicines research and development. For more information about the currently ongoing redesign of the Programme, click here.
The Toolbox was launched in January 2016 and contains a library of information around medicines research and development. This information is not medicine- or disease-specific. More than 5 million users have accessed the information on the Toolbox in less than four years, and users can access the Toolbox information in 13 languages. Explore the Toolbox.
EUPATI National Platforms (ENPs) mirror the EUPATI partnership at the country level. In some countries, ENPs are set up as an informal group run by volunteers, other countries have established legal entities with formal statutes and paid staff in place. Their work includes establishing national patient education programmes, establishing charters for patient involvement, members speaking internationally at conferences and promoting education by establishing workshops on patient engagement, mini-courses or webinars. Visit our National Platforms here.
Training on Patient Engagement
Training on Patient Engagement is necessary since there is a lack of understanding of efficient involvement that ensures patients and professionals both have a meaningful engagement that meets everyone’s expectations. EUPATI has developed trainings to meet these needs. The patient engagement trainings are co-designed and co-delivered with patient representatives in a multi-stakeholder framework. Click here to know more about our training portfolio.
EUPATI sits at the key interface between stakeholders looking to engage patients, and patients with the requisite knowledge to provide expert level input into medicines R&D. We therefore provide an increasingly active matchmaking service for members of the EUPATI partnership. Would you like to collaborate with us? Click here
Patient Engagement Initiatives
There is a wealth of initiatives on patient engagement and EUPATI collaborates closely bringing in the essential education component. True patient engagement cannot exist without quality education, hence our involvement with initiatives at the European and Global level. With its infrastructure for patient engagement, EUPATI moves the latest developments into practices through education. Click here to know more about these initiatives.
Meet the Team
Maria DutarteExecutive Director
Maria joined EUPATI in 2020 and is the Executive Director of the EUPATI Foundation. She oversees the EUPATI Secretariat and the different workstreams. She has previously worked as a Project Manager at the European AIDS Treatment Group (EATG) coordinating patient involvement in a number of training initiatives and scientific projects. Maria has also worked for different scientific and international organisations. Her educational background is in International Education and Communications.
Ingrid HeyneTraining Organisation and Alumni Coordinator
After 13 years in the Pharmaceutical Industry, Ingrid Heyne joined EUPATI in 2012 at the start of the EUPATI IMI Project phase. Currently, Ingrid is responsible for the organization and logistics of the EUPATI training portfolio, including the Patient Expert Programme and the Patient Engagement trainings. Ingrid also acts as the Alumni Coordinator.
Jana PopovaPatient Engagement Training Coordinator
Jana joined EUPATI in February 2021 as a Patient Engagement Training Coordinator. She is in charge of managing and implementing EUPATI’s patient engagement trainings, especially EUPATI Fundamentals and EUPATI Essentials, and to adjust and develop the in-house trainings. She is also engaged in establishing collaborations with third parties to increase the scope of EUPATI’s trainings for professionals, academia and industry. She is a PhD student in media and digital communications and has extensive experience in patient advocacy, digital health, training methods and communicational strategies.
Gemma KilleenBusiness Development Coordinator
Gemma joined EUPATI in 2017 and her role involves supporting EUPATI’s business development agenda (e.g. fundraising and proposal writing). Her expertise lies in strategy development and implementation, campaign management, and key leadership and stakeholder advocacy and engagement.
Bojan CiganPartnerships and Operations Coordinator
Bojan joined EUPATI in 2021 and coordinates EUPATI’s partnerships and supports the governance & decision-making processes. He has a professional background in psychology and has previously worked for LEGEBITRA (Slovenia) as a counsellor and project coordinator within HIV prevention. From 2017 until 2020, he worked for the European AIDS Treatment Group (EATG) as Events Coordinator and Project Officer on e.g. PARADIGM and EFOEUPATI.
Amanda LyonsNetworks & Communications Coordinator (Currently on leave)
Amanda joined the EUPATI team in October 2020 and works as the Networks & Communications Coordinator bringing a wealth of experience in event and communications management, relationship management, engagement strategy and marketing. Amanda’s role involves supporting the external and internal communications of EUPATI and coordinating the ENP Network helping to continue its growth, as part of the EUPATI programme. Amanda has previously worked in project management and communications in medical and scientific organisations.
Ieva LukaseOpen Classroom coordinator
Ieva joined EUPATI in June 2021 and coordinates the Open Classroom learning platform. Her professional background includes training design, facilitation and coordination, and learning & development projects at international education and non-profit organizations. Ieva has a Master’s Degree in Education Science with the focus on inclusion and diversity.
Silvia ScalabriniProject Coordinator
Silvia joined EUPATI in June 2021. She manages EUPATI’s involvement in international projects, e.g. with EIT Health and IMI. Silvia is a sociologist by background and has been working in the field of patient and public involvement since 2006. She has worked for the Italian and English National Health Systems for a number of years; supporting patients/the community to have a say/co-produce health services with health professionals.
Coline GuiolTemporary Networks and Communications Coordinator
Coline joined EUPATI at the end of 2021 temporarily taking over the internal and external communication of EUPATI and participate in the development of the ENP Network. Coline has experience working as a project coordinator for a EU-funded initiative advocating for international cultural relations and was a sales and press officer for the French Tourism Agency promoting the French destination on the Dutch market. She has a double master degree in European studies obtained at the universities of Groningen (NL) and Göttingen (DE).
Francisca PinheiroStudent Intern
Francisca joined EUPATI as an intern in February 2002. She is originally from Portugal and is currently fallowing the Management, Policy Analysis and Entrepreneurship Masters Programme in Health & Life Sciences (with specialisation in M&E) at Vrije Universiteit, Amsterdam. Francisca is mainly working on following up with the Alumni and other aspects related to the training portfolio.