Module 1: Establishing a successful relationship with patients
Module 1 focuses on how to establish a successful relationship with patients. It consists of core elements how to develop the relationship with patients, how to manage the expectations and how to set up the right framework. Practical examples how to identify the right patient groups and how to maintain a contact are also discussed. The training is co-designed and co-delivered by industry and patient representatives.
This module will help you to understand the following aspects:
- Core elements of a (patient) relationship;
- Expectations of patients and researchers;
- Identification of a task within a patient relationship;
- Planning for a patient engagement over the life cycle of a project;
- Setting up the right frame work;
- How to apply this in practice:
- Finding the right patient/patient group;
- Initiating and maintaining contact.
Module 2: Communication and cultural differences in the relationship with patients
The Module illustrates basic principles in communication and the role of cultural differences It covers the following topics:
- Different elements of a message;
- How does awareness of these elements help in the communication between patients and the researchers;
- Cultural differences (in communication);
- How could cultural differences influence the relationship between patients and researchers;
- Examples for cultural differences in patient engagement in general.
Module 3: Patient engagement with special patient populations
The Module focuses on the existence and the needs of specific patient populations like children, adolescents, and people with cognitive decline. The following topics are covered:
- Key descriptions of different groups of special patient populations;
- How to establish and develop contact with special patient populations;
- Information about guidelines and supportive documents to help working with these groups;
- Good practices and practical examples in patient engagement with special patient population.