Collaborations

Alliance of Patients’ Organizations (IAPO) is the global voice for people who suffer from any disease, disability, illness, impairment, or syndrome, and is the focal point for patients’ organizations around the world. IAPO is a non-State actor in an official relationship with the WHO and focuses on patient-centered healthcare. IAPO is a unique global alliance, committed to improving the lives of patients from all around the world. It aims to nurture relationships with members, partners and all those involved in healthcare, and build dialogue with decision-makers around the world to promote patient-centered healthcare. IAPO was registered as a not-for-profit foundation in 1999 in the Netherlands and as as a charity in the UK in 2014.

EUPATI, IAPO and Patient Academy for Innovation and Research (PAIR) work together as collaborative partners to create a patient education programme in the Asia-Pacific Region and beyond. This collaboration is based on the current EUPATI programme and model of education and delivery and will aim to expand the EUPATI programme of patient engagement into currently unserved global regions.

The EFPIA Patient Think Tank is a forum for an open exchange of ideas, information and perspectives between Patient Organisations and industry on topical issues impacting on patients. EUPATI has a role as an Observer in the Patient Think Tank.

The ERA4Health is a 7-year partnership co-funded under the Horizon Europe Program, the EU’s key funding program for research and innovation, facilitated by the European Commission. The EU-funded ERA4Health Partnership brings the opportunity to increase European transnational collaborative research funding by creating a funding body for joint programming in priority areas addressing European public health needs. The ERA4Health objectives are to: Support relevant medical research including clinical fields and intervention areas (prevention, diagnosis, treatment), improve the utilisation of existing health technologies in clinical practice, build capacity, in particular in conducting Investigator Initiated Clinical Studies at EU scale, implement and advance the practice of RRI across the breadth of the programme.

ERA4Health will be implemented in 2 phases: Phase 1 will implement joint calls focused on nutrition and lifestyle-related diseases, cardiovascular diseases and nanomedicine. Four calls are expected to be launched during the first two years). Phase 2. After Phase I, additional joint calls and multinational investigator initiated clinical studies for other priority areas are expected to be launched in accordance with the decision of the Health Programme Committee and the European Commission. Recently, ERA4Health launched a call on diet and physical activity (HealthEquity call) and a call on cardiovascular diseases (CARDINNOV call). Furthermore, they anticipate launching two additional calls this year regarding Nanomedicine.

EUPATI is a member of the Strategic Advisory Board (StAB), which  is the main body for strategic advice toward ERA4Health. The StAB is composed of representatives from societies and organizations in the European Research Area (ERA) and beyond.

Patient Academy for Innovation and Research (PAIR) was set up to develop and maintain capacity amongst patients in the Asia-Pacific Region and in the LMIC across the globe, to enable them to engage with their health systems in a more meaningful and strategic manner. By equipping patients to care for themselves and others, by framing their experience with evidence-based expertise, and by encouraging them to share their expertise with other patients who suffer from the same or similar conditions and diseases PAIR hopes to co-create patient-centered effective and efficient health systems. PAIR, in the emerging digital world, wants to empower patients with chronic conditions into becoming Expert-Patients so they can participate in and understand how to navigate their healthcare system as equal partners. PAIR wants to ensure expert patients can co-create sustainable healthcare systems by improving their safety, quality, accessibility, acceptability, affordability, and equity.

EUPATI, Alliance of Patients’ Organizations (IAPO) and PAIR work together as collaborative partners to create a patient education programme in the Asia-Pacific Region and beyond. This collaboration is based on the current EUPATI programme and model of education and delivery and will aim to expand the EUPATI programme of patient engagement into currently unserved global regions.

Patient Focused Medicines Development (PFMD) aims to transform the way in which we understand, engage, and partner with patients globally in the design and development of research and medicines by focusing on unmet patient needs. PFMD (Patient Focused Medicine Development) & EUPATI have a common objective: supporting all stakeholders in making patient engagement the new normal. PFMD and EUPATI have joined efforts in providing training and increasing awareness about patient engagement to all stakeholders. This collaboration enables breaking down existing silos, identifying and disseminating best practices across the board, avoiding redundancy and fragmentation, and building coherent and complementary capacity to deliver patient engagement. The goal is to collaborate in developing a capacity building portfolio available in different formats: online (self-paced, provided by PFMD) and in-person (classroom training, provided by EUPATI), long and short versions to meet the needs of the various stakeholder groups and audiences. Please read more here: A shared vision: bringing empowered patients to the table.

Patvocates add tailored education to standardised EUPATI modules, targeting the same market. Patvocates is a social enterprise investing a percentage of its turnover in patient engagement initiatives such as the EUPATI Foundation. EUPATI and Patvocates collaborate around training and capacity building for patients and patient organisations.

ECHAlliance is a global health connector and a not-for profit organisation. Their global community connects 78 countries and 4.4 billion people (Africa, Americas, Asia, Canada, Caribbean, China, Europe, India, the Pacific & USA). Their community gathers 55+ digital health ecosystems, 750+ member organisations and 16,500 + experts. Their member organisations include companies, policy-makers, research organisations, health and social care providers, patient groups, insurance, procurers and government ministries. As a member organisation, their core activity is on connecting the dots for people – connecting them to each other. They do this through their network of Digital Health Ecosystems (groups who come together at local level to discuss issues), communications and networking, supporting their members, global events and funding/tenders and their large network of members.

EUPATI and ECHAlliance work together to share information which would benefit the membership and audiences of both organisations.

The European Centre for Clinical Research Training (ECCRT) is a professional clinical research training provider focusing on the transfer of implementable knowledge in the day-to-day activities of our participants.

EUPATI and ECCRT collaborate around trainings about patient engagement in clinical research. ECCRT’s mission is to facilitate Clinical Research professionals to excel in their job for the benefit of patients. ECCRT aim to achieve this by providing clinical research professionals with competencies to develop new therapies for patients quicker & more efficient, without jeopardizing quality.