Collaborations

EUPATI collaborates with a wide range of stakeholders within the patient education and patient engagement landscape.

The different groups below contribute to ensuring that EUPATI continues to offer high quality training and education on medicines’ development to patients and patient representatives to enable a more systematic and meaningful patient engagement.

Collaboration with other initiatives

EUPATI maintains several important partnerships with external actors in the patient engagement field. Some of these are listed below.

In addition, EUPATI has close partnerships with national health councils and regulatory agencies (including the European Medicines Agency, EMA). EU-associated organisations, providing the opportunity for funding, such as IMI and EIT, are additional key partners for EUPATI.

If you would like to collaborate us, contact us directly via [email protected] or our Collaborate portal.

European Patients’ Forum (EPF)

EPF has played a leading role in EUPATI since its inception and has hosted the consortium as a programme since 2017. Their leadership and commitment to EUPATI to date, its transition and support for the Foundation is a fundamental critical success factor for the future model. The EUPATI Foundation will continue to maintain a close relationship with EPF, as reflected in the governance structure.

Patient Focused Medicines Development (PFMD)

Under the EUPATI-PFMD partnership on patient engagement, PFMD coordinates and leads on knowledge generation, and EUPATI coordinates and leads on the development and delivery of education and training, which in certain parts is performed by PFMD.

Patvocates

Patvocates add tailored education to standardised EUPATI modules, targeting the same market. Patvocates is a social enterprise investing a percentage of its turnover in patient engagement initiatives such as the EUPATI Foundation.

VMLY&Rx

VMLY&Rx is a global healthcare agency focused on Rx specialty pharmaceutical companies who are researching and developing breakthrough therapies. VMLY&Rx offers world-class brand building, experience marketing and healthcare-specific expertise.

 

EFPIA Patient Think Tank

The EFPIA Patient Think Tank is a forum for an open exchange of ideas, information and perspectives between Patient Organisations and industry on topical issues impacting on patients. EUPATI has a role as an Observer in the Patient Think Tank.

ERA PerMed

ERA PerMed is a funding scheme for the research area of Personalised Medicine. It is the biggest ERA-Net in Health, supported by 32 partners from 23 countries and co-funded by the European Commission. It seeks to align national research strategies, promote excellence, reinforce the competitiveness of European players in Personalised Medicine, and enhance the European collaboration with non-EU countries, national funding organisations have agreed to launch Joint Transnational Calls for collaborative innovative research projects in Personalised Medicine.

EUPATI and ERA PerMed collaborate around matchmaking and patient engagement, focusing on bringing patients as active partners into the processes of research and research funding strategies.

Alliance of Patients’ Organizations (IAPO)

Alliance of Patients’ Organizations (IAPO) formed as a patients’ groups alliance 21 years ago and is focused on promoting patient-centered healthcare. IAPO today is the global voice for people who suffer from any disease, disability, illness, impairment, or syndrome, and is the focal point for patients’ organizations around the world. IAPO is a non-State actor in an official relationship with the WHO. IAPO was first registered as a not-for-profit foundation in 1999 in the Netherlands.

In January 2014, IAPO was registered in the UK as a charity. IAPO remains a unique global alliance, committed to improving the lives of patients from all around the world. IAPO’s aims to nurture relationships with members, partners and all those involved in healthcare, and build dialogue with decision-makers around the world to promote patient-centered healthcare.

EUPATI, IAPO and PAIR will work together as collaborative partners to create a patient education programme in the Asia-Pacific Region and beyond. This collaboration will be based on the current EUPATI programme and model of education and delivery and will aim to expand the EUPATI programme of patient engagement into currently unserved global regions.

Patient Academy for Innovation and Research (PAIR)

Patient Academy for Innovation and Research (PAIR) was set up to develop and maintain capacity amongst patients in the Asia-Pacific Region and in the LMIC across the globe, to enable them to engage with their health systems in a more meaningful and strategic manner. By equipping patients to care for themselves and others, by framing their experience with evidence-based expertise, and by encouraging them to share their expertise with other patients who suffer from the same or similar conditions and diseases PAIR hopes to co-create patient-centered effective and efficient health systems.

PAIR, in the emerging digital world, wants to empower patients with chronic conditions into becoming Expert-Patients so they can participate in and understand how to navigate their healthcare system as equal partners. PAIR wants to ensure expert patients can co-create sustainable healthcare systems by improving their safety, quality, accessibility, acceptability, affordability, and equity.

EUPATI, IAPO and PAIR will work together as collaborative partners to create a patient education programme in the Asia-Pacific Region and beyond. This collaboration will be based on the current EUPATI programme and model of education and delivery and will aim to expand the EUPATI programme of patient engagement into currently unserved global regions.

ECHAlliance

ECHAlliance is a global health connector and a not-for profit organisation. Their global community connects 78 countries and 4.4 billion people (Africa, Americas, Asia, Canada, Caribbean, China, Europe, India, the Pacific & USA). Their community gathers 55+ digital health ecosystems, 750+ member organisations and 16,500 + experts. Their member organisations include companies, policy-makers, research organisations, health and social care providers, patient groups, insurance, procurers and government ministries.

As a member organisation, their core activity is on connecting the dots for people – connecting them to each other. They do this through their network of Digital Health Ecosystems (groups who come together at local level to discuss issues), communications and networking, supporting their members, global events and funding/tenders and their large network of members.

EUPATI and ECHAlliance work together to share information which would benefit the membership and audiences of both organisations.